Iranian Journal of Nursing and Midwifery Research، جلد ۱۹، شماره ۷، صفحات ۷۷-۰

عنوان فارسی
چکیده فارسی مقاله
کلیدواژه‌های فارسی مقاله

عنوان انگلیسی Living in a misty marsh: A qualitative study on the experiences of self-care suffering of patients with thalassemia
چکیده انگلیسی مقاله ABSTRACT Background: Thalassemia major is the most common hereditary anemia in Iran. Thalassemia major patients require lifelong care and suffer much pain during self-care. Knowledge of the nature, meaning, and impact of suffering from the perspective of patients is needed to determine which interventions are helpful. This study was designed to understand the experience of suffering in patients with thalassemia. Materials and Methods: This was a qualitative study conducted with content analysis method. In the present study, 21 patients with thalassemia were selected by purposive sampling. The research was performed at Kerman Samen Alhojaj Medical Center, Iran, in 2013. Data collection method was conducting unstructured interviews using open-ended questions and fi eld notes. In addition, data were analyzed using qualitative content analysis and conventional approach. Results: Data analysis resulted in the emergence of the four central categories of physical exhaustion, mental and spiritual restlessness, society’s behaviors and beliefs, and surviving a hard life, which were the suffering themes of the patients. Conclusions: Results showed that thalassemia in the physical, psychological, social, and spiritual aspects is very stressful for patients. Moreover, culture plays an important role in the patients’ experience of suffering. Results of this study can help nurses improve nursing care to alleviate suffering based on these experiences.
کلیدواژه‌های انگلیسی مقاله Qualitative research, suffering, self-care, thalassemia

نویسندگان مقاله بتول پورابولی | batool pouraboli


حیدر علی عابدی | heidar ali abedi


عباس عباس زاده | abbas abbaszadeh


مجید کاظمی | majid kazemi



نشانی اینترنتی http://www.ijnmr.mui.ac.ir/index.php/ijnmr/article/view/1156
فایل مقاله اشکال در دسترسی به فایل - ./files/site1/rds_journals/113/article-113-55853.pdf
کد مقاله (doi)
زبان مقاله منتشر شده en
موضوعات مقاله منتشر شده
نوع مقاله منتشر شده Original Article
برگشت به: صفحه اول پایگاه   |   نسخه مرتبط   |   نشریه مرتبط   |   فهرست نشریات