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Iranian Journal of Public Health، جلد ۴۹، شماره ۴، صفحات ۷۳۶-۷۴۳

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عنوان انگلیسی Sustaining the National Spinal Cord Injury Registry of Iran (NSCIR-IR) in a Regional Center: Challenges and Solutions
چکیده انگلیسی مقاله Background: The National Traumatic Spinal Cord Injury Registry in Iran (NSCIR-IR), was implemented initially in three hospitals as a pilot phase from 11 Oct 2015 to 19 Jun 2016 and has been active in eight centers from 19 Jun 2016. Poursina Hospital, a trauma care referral center in Rasht, Guilan Province of Iran is one of the registry sites, and has been involved in registering eligible patients since 1 Jan 2016. This study aimed to identify the challenges and solutions for sustaining the NSCIR-IR in a regional center. Methods: This was a mixed-methods study. For the quantitative analysis, a retrospective observational design was used to measure case capture or case identification rate, mapping cases in the registry against those eligible for registry inclusion amongst the register of hospital admissions. For the qualitative component, data was collected using focus group discussions and semi-structured interviews, followed by thematic analysis. Results: From 19 Jun 2016 to 24 Jan 2018, the proportion of case capture (case identification rate) was 17%. The median time between case identification and data entry to the system was 30.5 d (range: 2 to 193 d). Thematic analysis identified a lack of trained human resources as the most important cause of low case identification rate and delay in data completion. Conclusion: Recruitment and education to increase trained human resources are needed to improve case capture, the timeliness of data input and registry sustainability in a regional participating site.  
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نویسندگان مقاله | Zahra AZADMANJIR
1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 2. Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran 3. National Inistitue for Medical Research Development (NIMAD), Tehran, Iran


| Zahra MOHTASHAM-AMIRI
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Seyed-Mahdi ZIABARI
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Leila KOCHAKINEJAD
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Hamid HAIDARI
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Mina MOHSENI
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Hadis SABOUR
Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran


| Zahra KHAZAEIPOUR
Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran


| Mahdi SHARIF-ALHOSEINI
Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran


| Zahra GHODSI
Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran


| Abbas AMIRJAMSHIDI
Department of Neurosurgery, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran


| Farshad AKBARZADEH
Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran


| Kazem ZENDEHDEL
Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran


| Amir AZARHOMAYOUN
Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran


| Khatereh NAGHDI
Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran


| Gerard OREILLY
Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia


| Ellen MERETE
1. Autonomic Unit, National Hospital for Neurology & Neurosurgery, Queen Square, London, UK 2. Institute of Neurology, University College London, London, UK


| Alexander R VACCARO
Department of Orthopaedic Surgery, The Rothman Institute, Thomas Jefferson University, Philadelphia, USA


| Edward C BENZEL
Cleveland Clinic Foundation, Department of Neurosurgery, Cleveland, Ohio, USA


| Seyed Behzad JAZAYERI
Department of Urology, University of Florida, Jacksonville, FL, USA


| Vafa RAHIMI-MOVAGHAR
1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran 2. Brain and Spinal Cord Injury Research Center, Neurosciences Institute, Tehran University of Medical Sciences, Tehran, Iran



نشانی اینترنتی http://ijph.tums.ac.ir/index.php/ijph/article/view/20166
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